José Cofiño - member of a loving family, friend, classmate and colleague living with ALS
Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!
100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.
José, Ben and Friends Go Beyond ALS - Blog
Genervon Biopharmaceuticals LLC (“Genervon”) today announced that it has completed the analysis of its Phase 2a double blinded, randomized, placebo controlled clinical trials of Amyotrophic Lateral Sclerosis (“ALS”) and Parkinson’s disease for its drug candidate GM6.
Steve Dezember was diagnosed with ALS in 2011. He and his wife, Hope Cross Dezember have made it their mission to spread awareness about the disease. In this piece, she continues this work.
Phillip Macko suffered an accident that brought him to near death and led him to years of taking pain killers. He not only survived, but he thrived, having learned from the experience.
This week, Ben and I travelled to Cambridge to enter the ALS TDI Precision Medicine Program (PMP) to help find treatments for ALS. Participating in this research is an honor. As we flew back to CA, this is what went through my mind.
I can't raise my arms - dressing, eating and showering have become impossible. Yet, I am very positive. Yes I am!
What is Beyond ALS?
Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.
Please Share Your Thoughts and Comments
Living with ALS is a journey of innumerable ups and downs. You have come to BeyondALS because you, in some way, have been touched by Lou Gehrig's Disease: as a PALS, caregiver, family member, or friend. Sharing your own experiences and thoughts will help others, as we all deal with the realites of living with ALS and with life after it has taken a dear one.
We offer this space as an opportunity to share, celebrate, rant and grieve. At its heart, this is YOUR page to help us all go Beyond ALS.
Share Here: ALS Thoughts and Comments