José Cofiño - member of a loving family, friend, classmate and colleague living with ALS

Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!

100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.

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José, Ben and Friends Go BeyondALS - Blog

On Fear, Anger and Living the Moment

On Fear, Anger and Living the Moment
By José Cofiño on Mar 13, 2015 at 11:12 AM in Overcoming Adversity

Anger stems from living in the past, fear from living in the future. Joy is found on being fully present in very instant in which one is living.

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Franchising World Article - José Cofiño & ALS

Franchising World Article - José Cofiño & ALS
By José Cofiño on Mar 07, 2015 at 09:48 AM in Overcoming Adversity

With everything that had happened early in my life, there was sense of needing to do something which mattered. Perhaps it would be through business, but I was wrong.

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ALS - Nobody Wants This Exclusive Club

By José Cofiño on Feb 25, 2015 at 01:30 PM in Living With ALS

I belong to a club to which nobody wants to belong. The dues are incredibly high. “A pound of flesh” doesn’t begin to describe them.

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How Stephen Hawking Has Lived With ALS for Decades

How Stephen Hawking Has Lived With ALS for Decades
By José Cofiño on Feb 24, 2015 at 10:33 AM in Living With ALS

Stephen Hawking, living with ALS for decades, has given rise to one of the most striking contrasts of pop science. There is Stephen Hawking’s atrophied frame, slack-jawed expression and slumped shoulders. And there is Hawking’s unmatched mind, inhabiting the stars.

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ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed

ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed
By José Cofiño on Feb 08, 2015 at 11:05 AM in Living With ALS

Open and honest discussions are essential in the discovery of fact and the forming of opinion. This is crucial if we are going to find solutions for ALS.

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Ben Trust - A Caregiver's Perspective...

What is Beyond ALS?

Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.

It was an honor to participate in the Augie's Quest Traditions of Hope Gala...

Donations Directly into Research: Precision Medicine Program Video...