José Cofiño - member of a loving family, friend, classmate and colleague living with ALS
Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!
100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.
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José, Ben and Friends Go BeyondALS - Blog
Some thoughts about living with ALS: Living life fast, fully and in a sharing manner.
PMP stands for both Pseudomyxoma peritonei (Cancer of the Appendix) and Precision Medicine Program. Jenny Gore Dwyer is a survivor of the former and a hopeful participant of the latter in trying to find a way to go BeyondALS.
I went snorkeling in Costa Rica last week. An event not covered by media, even the plethora of cameras our group used to document an amazing week in Central America.
Recently I happened upon one of those rare, eternally optimistic individuals who routinely looks for opportunity hiding beneath every rock of adversity. And his overriding confidence is not just for show. He really lives and breathes this approach to life every day — it seems to be part of his DNA.
All my life, hard work and perseverance paid off. If I put my mind to something it would eventually happen. The path was filled with bumps and detours, but I reached my goals all the same. I've been approaching ALS with the same conviction. I share my struggle, not for pity, but to encourage you to live your best life.
Ben Trust - A Caregiver's Perspective...
What is Beyond ALS?
Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.