José Cofiño - member of a loving family, friend, classmate and colleague living with ALS

Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!

100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.

José, Ben and Friends Go Beyond ALS - Blog

Genervon Announces ALS and PD Phase 2a Trial Results

By José Cofiño on Oct 20, 2014 at 05:36 PM in ALS Research

Genervon Biopharmaceuticals LLC (“Genervon”) today announced that it has completed the analysis of its Phase 2a double blinded, randomized, placebo controlled clinical trials of Amyotrophic Lateral Sclerosis (“ALS”) and Parkinson’s disease for its drug candidate GM6.

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Ice Bucket Challenge - A Human Movement for ALS

Ice Bucket Challenge - A Human Movement for ALS
By José Cofiño on Oct 09, 2014 at 12:17 PM in Friends of Beyond ALS

Steve Dezember was diagnosed with ALS in 2011. He and his wife, Hope Cross Dezember have made it their mission to spread awareness about the disease. In this piece, she continues this work.

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Beyond Survival: Thriving After Adversity

Beyond Survival: Thriving After Adversity
By Phil Macko on Oct 06, 2014 at 10:55 AM in Overcoming Adversity

Phillip Macko suffered an accident that brought him to near death and led him to years of taking pain killers. He not only survived, but he thrived, having learned from the experience.

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ALS TDI Precision Medicine Program - Mapping Genomes & Creating Stem Cell Lines

ALS TDI Precision Medicine Program - Mapping Genomes & Creating Stem Cell Lines
By José Cofiño on Oct 02, 2014 at 12:11 PM in ALS Research

This week, Ben and I travelled to Cambridge to enter the ALS TDI Precision Medicine Program (PMP) to help find treatments for ALS. Participating in this research is an honor. As we flew back to CA, this is what went through my mind.

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Pat Quinn, Catalyst of ALS Ice Bucket Challenge, on going Beyond ALS

Pat Quinn, Catalyst of ALS Ice Bucket Challenge, on going Beyond ALS
By Pat Quinn on Sep 30, 2014 at 09:35 AM in Overcoming Adversity

I can't raise my arms - dressing, eating and showering have become impossible. Yet, I am very positive. Yes I am!

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What is Beyond ALS?

Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.

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Please Share Your Thoughts and Comments

Living with ALS is a journey of innumerable ups and downs. You have come to BeyondALS because you, in some way, have been touched by Lou Gehrig's Disease: as a PALS, caregiver, family member, or friend. Sharing your own experiences and thoughts will help others, as we all deal with the realites of living with ALS and with life after it has taken a dear one.

We offer this space as an opportunity to share, celebrate, rant and grieve. At its heart, this is YOUR page to help us all go Beyond ALS.

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June Day

Thanks to Beyond ALS, I was able to help my daughter understand what was happening to her. Thank you for making this information available!

José Cofiño

"The conquest of fear yields the courage of life. That is the cardinal initiation of every heroic adventure - fearlessness and achievement."

-- Joseph Campbell (1904 - 1987)

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