José Cofiño - member of a loving family, friend, classmate and colleague living with ALS

Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!

100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.

José, Ben and Friends Go Beyond ALS - Blog

Cynder Sinclair: Santa Barbaran José Cofiño Finds Opportunity in the Challenge of ALS

Cynder Sinclair: Santa Barbaran José Cofiño Finds Opportunity in the Challenge of ALS
By Cynder Sinclair on Nov 26, 2014 at 12:00 AM in Overcoming Adversity

Recently I happened upon one of those rare, eternally optimistic individuals who routinely looks for opportunity hiding beneath every rock of adversity. And his overriding confidence is not just for show. He really lives and breathes this approach to life every day — it seems to be part of his DNA.

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Living with ALS - Surrendering at a New Level

Living with ALS - Surrendering at a New Level
By Shelly Hoover on Nov 17, 2014 at 10:05 AM in Living With ALS

All my life, hard work and perseverance paid off. If I put my mind to something it would eventually happen. The path was filled with bumps and detours, but I reached my goals all the same. I've been approaching ALS with the same conviction. I share my struggle, not for pity, but to encourage you to live your best life.

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Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon

Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon
By Karen Kang on Nov 14, 2014 at 11:49 AM in Living With ALS

I saw the first Ice Bucket Challenge on Facebook only days after my husband, Jon Ferraiolo, was diagnosed with ALS. My husband jokingly said of the attention on ALS, “How nice for everyone to be doing this for me.” He is the same positive, caring guy with a brilliant mind, only now his body is failing him.

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ALS - A Companion's Perspective...Ben's Perspective

ALS - A Companion's Perspective...Ben's Perspective
By Ben Trust on Nov 06, 2014 at 09:43 AM in Living With ALS

What does it feel like to watch your companion slowly suffer the effect of ALS? What does it feel like to have the financial ax hang over you as you come out of shock and try to figure out how to support all of this? Its not easy.

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Beverly Hills Courier - Augie's Quest Traditions of Hope Gala 2014

Beverly Hills Courier - Augie's Quest Traditions of Hope Gala 2014
By José Cofiño on Oct 31, 2014 at 03:36 PM in Overcoming Adversity

This year’s annual Tradition of Hope Gala, which was held Saturday evening at The Beverly Hilton, raised over $900,000 for Amyotrophic Lateral Sclerosis (ALS) research.

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It was an honor to participate in the Augie's Quest Traditions of Hope Gala...

What is Beyond ALS?

Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.

Please Share Your Thoughts and Comments

Living with ALS is a journey of innumerable ups and downs. You have come to BeyondALS because you, in some way, have been touched by Lou Gehrig's Disease: as a PALS, caregiver, family member, or friend. Sharing your own experiences and thoughts will help others, as we all deal with the realites of living with ALS and with life after it has taken a dear one.

We offer this space as an opportunity to share, celebrate, rant and grieve. At its heart, this is YOUR page to help us all go Beyond ALS.

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June Day

Thanks to Beyond ALS, I was able to help my daughter understand what was happening to her. Thank you for making this information available!

José Cofiño

"The conquest of fear yields the courage of life. That is the cardinal initiation of every heroic adventure - fearlessness and achievement."

-- Joseph Campbell (1904 - 1987)

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