José Cofiño - member of a loving family, friend, classmate and colleague living with ALS
Beyond ALS means seeing people with amyotrophic lateral sclerosis (ALS) as being much more than the disease, as well as having us focus on a time when research will find a solution for Lou Gehrig's Disease. My journey is not mine alone. My partner, Ben Trust, is by my side every step - one at a time. So, too, are my family and friends. Please join us!
100% of donations through this site go to directly to research at the ALS Therapy Development Institute (ALS-TDI) in Cambridge, Mass.
José, Ben and Friends Go Beyond ALS - Blog
You can't “do” ALS alone. I know there are families facing ALS without any support. And I know how lucky I am: there are 10 Gore Girls that have each other’s back. It is an incredible support group. It is only one part of the support I have and must pass on.
Professor John Heywood SM ’62, PhD ’65 and his two sons, Jamie ‘91 and Ben ’93, have used MIT thinking — in particular, systems dynamics and manufacturing management — to transform research models after losing a family member to ALS.
Franchising embraced the ALS Ice Bucket Challenge, and although the videos on Facebook of various franchise executives dumping a bucket of ice water over their heads didn’t have the page views as the celebrities, such as Mark Zuckerberg and Governor Chris Christie, there were no shortage of franchise challenges.
When we asked for his thoughts about ALS, Augie Nieto, who has been living with ALS for over nine years, teaches us it's good to laugh at it.
As I sit here thinking about what I want to write, however, the only thing that keeps popping into my head is my handsome husband, Pat. I really can't write about life with ALS, or life “Beyond ALS”, without first talking about him.
What is Beyond ALS?
Beyond ALS is dedicated to helping increase awareness for ALS: a deadly disease with no known cause, no treatment and no cure; and to raise funds for ALS Therapy Development Institute, a leading research institution in the fight against Lou Gehrig's Disease. 100% of donations through this site go to research at the Institute.