Overcoming Adversity

Pat Quinn, Catalyst of ALS Ice Bucket Challenge, on going Beyond ALS

Pat Quinn, Catalyst of ALS Ice Bucket Challenge, on going Beyond ALS
By Pat Quinn on Sep 30, 2014 at 09:35 AM in Overcoming Adversity

I can't raise my arms - dressing, eating and showering have become impossible. Yet, I am very positive. Yes I am!

Read more...

ALS SUPPORT GROUPS: Family, Friends, Strangers and You

ALS SUPPORT GROUPS: Family, Friends, Strangers and You
By Jenny Gore Dwyer on Sep 24, 2014 at 08:18 PM in Overcoming Adversity

You can't do ALS alone. I know there are families facing ALS without any support. And I know how lucky I am: there are 10 Gore Girls that have each others back. It is an incredible support group. It is only one part of the support I have and must pass on.

Read more...

Augie Nieto's top ten reasons why it is good to have ALS

Augie Nieto's top ten reasons why it is good to have ALS
By Augie Nieto on Sep 09, 2014 at 09:47 AM in Overcoming Adversity

When we asked for his thoughts about ALS, Augie Nieto, who has been living with ALS for over nine years, teaches us it's good to laugh at it.

Read more...

Going Beyond ALS A Loving Journey

Going Beyond ALS  A Loving Journey
By Jenny Gore Dwyer on Sep 05, 2014 at 08:27 AM in Overcoming Adversity

As I sit here thinking about what I want to write, however, the only thing that keeps popping into my head is my handsome husband, Pat. I really can't write about life with ALS, or life Beyond ALS, without first talking about him.

Read more...

Ice Bucket Challenge Fades - Living With ALS Challenges Goes On

Ice Bucket Challenge Fades - Living With ALS Challenges Goes On
By Jos Cofio on Sep 03, 2014 at 01:57 PM in Overcoming Adversity

As the ALS Ice Bucket Challenge winds down, please remember that for those of us living with ALS, the challenge continues.

Read more...

ALS Association - Slow to Invest Ice Bucket Challenge Dollars in Research

ALS Association  - Slow to Invest Ice Bucket Challenge Dollars in Research
By Jos Cofio on Aug 25, 2014 at 02:39 PM in Overcoming Adversity

In recent articles, (Fortune.com) and interviews (PBS NewsHour), the leadership of ALSA have made it clear that their organization's mission includes other matters such as advocacy and patient support and that they will take time to ensure the dollars are spent wisely. Why delay?

Read more...

ALS Ice Bucket Challenge - Gay Couple Reveals Living With ALS

ALS Ice Bucket Challenge - Gay Couple Reveals Living With ALS
By Jos Cofio on Aug 22, 2014 at 04:27 PM in Overcoming Adversity

My partner of 16 years, Ben Trust and I figured we would live a long life together. We were both healthy, regulars at the gym, and also loved to hike. We ate the right things and used sunscreen. As with many in the gay community, the way we looked was important. Then, slowly, I began to have cramping in my legs and abs, and twitching in my arms and legs. I thought nothing of it until after two days of hiking and bike riding, I collapsed when I got off my bike.

Read more...

Lou Gehrig - Let's Give His Name Back to Baseball

By Jos Cofio on Jul 09, 2014 at 10:45 AM in Overcoming Adversity

I had the great pleasure and honor to speak to the fans and throw out the first ball at the Fourth of July game of the Bellingham Bells in Washington State. My thoughts included the goal of finding a solution for ALS and having the Iron Horse's name return for being synonymous with outstanding baseball and not with a deadly disease.

Read more...