Living With ALS

SB Independent - Ice Bucket Challenge: One Year Later

SB Independent - Ice Bucket Challenge: One Year Later
By Jos Cofio on Aug 19, 2015 at 09:30 AM in Living With ALS

ALS Research has been helped by the money raised during the Ice Bucket Challenge, but much is left to do.

Read more...

YPO/WPO Dinner - Overcoming Mental Obstacles & Finding Energy

YPO/WPO Dinner - Overcoming Mental Obstacles & Finding Energy
By Jos Cofio on May 14, 2015 at 10:27 AM in Living With ALS

An event I was enthusiastically anticipating quickly became tainted by doubt and worry. I considered cancelling at the last moment, searching my brain for a plausible excuse for bowing out. I am so glad I went through with it.

Read more...

ALS: Mind-Body Connection & The Impact of Anger

ALS: Mind-Body Connection & The Impact of Anger
By Jos Cofio on May 06, 2015 at 07:19 PM in Living With ALS

There is plenty to be angry about and some people take the opportunity to do so at every turn. One need only watch the evening news to know this is the case. Perhaps none have a greater right to this emotion, or even rage, than those living with, or around, ALS. However, I have a different thought.

Read more...

ALS Awareness Month - EVERY Day

ALS Awareness Month - EVERY Day
By Jos Cofio on May 04, 2015 at 11:14 AM in Living With ALS

May is ALS Awareness month. Those of us with a front row seat to the disease are well aware of this fact, and many are doing their part to spread the word. By living our lives honestly, we make people aware of ALS - not just this month, but every day.

Read more...

On Living Life Honestly

On Living Life Honestly
By Jos Cofio on Apr 17, 2015 at 10:21 AM in Living With ALS

Living honestly is liberating and yields many unforeseen benefits. It is not just about being truthful with others, but being transparent with ourselves so that real solutions may be found.

Read more...

The Love of a Mother; The Love of Friends

The Love of a Mother; The Love of Friends
By Jos Cofio on Apr 14, 2015 at 04:00 AM in Living With ALS

On the day I told mam I had been diagnosed with ALS, her mind immediately went to what she could do to help. Prayer came to mind. Later, a friend stepped up to help her live in an assisted living community near us.

Read more...

How Stephen Hawking Has Lived With ALS for Decades

How Stephen Hawking Has Lived With ALS for Decades
By Jos Cofio on Feb 24, 2015 at 10:33 AM in Living With ALS

Stephen Hawking, living with ALS for decades, has given rise to one of the most striking contrasts of pop science. There is Stephen Hawkings atrophied frame, slack-jawed expression and slumped shoulders. And there is Hawkings unmatched mind, inhabiting the stars.

Read more...

ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed

ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed
By Jos Cofio on Feb 08, 2015 at 11:05 AM in Living With ALS

Open and honest discussions are essential in the discovery of fact and the forming of opinion. This is crucial if we are going to find solutions for ALS.

Read more...

ALS- Living Life Fast

ALS- Living Life Fast
By Jos Cofio on Jan 29, 2015 at 10:18 AM in Living With ALS

Some thoughts about living with ALS: Living life fast, fully and in a sharing manner.

Read more...

BeyondALS: Snorkeling in Las Catalinas, Costa Rica

BeyondALS: Snorkeling in Las Catalinas, Costa Rica
By Jos Cofio on Jan 15, 2015 at 03:34 PM in Living With ALS

I went snorkeling in Costa Rica last week. An event not covered by media, even the plethora of cameras our group used to document an amazing week in Central America.

Read more...