José, Ben and Life Today - Blog

On Living Life Honestly

On Living Life Honestly
By Jos Cofio on Apr 17, 2015 at 10:21 AM in Living With ALS

Living honestly is liberating and yields many unforeseen benefits. It is not just about being truthful with others, but being transparent with ourselves so that real solutions may be found.

Read more...

The Love of a Mother; The Love of Friends

The Love of a Mother; The Love of Friends
By Jos Cofio on Apr 14, 2015 at 04:00 AM in Living With ALS

On the day I told mam I had been diagnosed with ALS, her mind immediately went to what she could do to help. Prayer came to mind. Later, a friend stepped up to help her live in an assisted living community near us.

Read more...

On Fear, Anger and Living the Moment

On Fear, Anger and Living the Moment
By Jos Cofio on Mar 13, 2015 at 11:12 AM in Overcoming Adversity

Anger stems from living in the past, fear from living in the future. Joy is found on being fully present in very instant in which one is living.

Read more...

Franchising World Article - Jos Cofio & ALS

Franchising World Article - Jos Cofio & ALS
By Jos Cofio on Mar 07, 2015 at 09:48 AM in Overcoming Adversity

With everything that had happened early in my life, there was sense of needing to do something which mattered. Perhaps it would be through business, but I was wrong.

Read more...

ALS - Nobody Wants This Exclusive Club

By Jos Cofio on Feb 25, 2015 at 01:30 PM in Living With ALS

I belong to a club to which nobody wants to belong. The dues are incredibly high. A pound of flesh doesnt begin to describe them.

Read more...

How Stephen Hawking Has Lived With ALS for Decades

How Stephen Hawking Has Lived With ALS for Decades
By Jos Cofio on Feb 24, 2015 at 10:33 AM in Living With ALS

Stephen Hawking, living with ALS for decades, has given rise to one of the most striking contrasts of pop science. There is Stephen Hawkings atrophied frame, slack-jawed expression and slumped shoulders. And there is Hawkings unmatched mind, inhabiting the stars.

Read more...

ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed

ALSA, GM604 and Right-to-Try - Open, Honest Discussion Needed
By Jos Cofio on Feb 08, 2015 at 11:05 AM in Living With ALS

Open and honest discussions are essential in the discovery of fact and the forming of opinion. This is crucial if we are going to find solutions for ALS.

Read more...

ALS- Living Life Fast

ALS- Living Life Fast
By Jos Cofio on Jan 29, 2015 at 10:18 AM in Living With ALS

Some thoughts about living with ALS: Living life fast, fully and in a sharing manner.

Read more...

PMP as Feared Cancer & PMP as Hopeful Research

PMP as Feared Cancer & PMP as Hopeful Research
By Jenny Gore Dwyer on Jan 16, 2015 at 06:53 PM in Overcoming Adversity

PMP stands for both Pseudomyxoma peritonei (Cancer of the Appendix) and Precision Medicine Program. Jenny Gore Dwyer is a survivor of the former and a hopeful participant of the latter in trying to find a way to go BeyondALS.

Read more...

BeyondALS: Snorkeling in Las Catalinas, Costa Rica

BeyondALS: Snorkeling in Las Catalinas, Costa Rica
By Jos Cofio on Jan 15, 2015 at 03:34 PM in Living With ALS

I went snorkeling in Costa Rica last week. An event not covered by media, even the plethora of cameras our group used to document an amazing week in Central America.

Read more...