José, Ben and Life Today - Blog

Cynder Sinclair: Santa Barbaran Jos Cofio Finds Opportunity in the Challenge of ALS

Cynder Sinclair: Santa Barbaran Jos Cofio Finds Opportunity in the Challenge of ALS
By Cynder Sinclair on Nov 26, 2014 at 12:00 AM in Overcoming Adversity

Recently I happened upon one of those rare, eternally optimistic individuals who routinely looks for opportunity hiding beneath every rock of adversity. And his overriding confidence is not just for show. He really lives and breathes this approach to life every day it seems to be part of his DNA.

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Living with ALS - Surrendering at a New Level

Living with ALS - Surrendering at a New Level
By Shelly Hoover on Nov 17, 2014 at 10:05 AM in Living With ALS

All my life, hard work and perseverance paid off. If I put my mind to something it would eventually happen. The path was filled with bumps and detours, but I reached my goals all the same. I've been approaching ALS with the same conviction. I share my struggle, not for pity, but to encourage you to live your best life.

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Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon

Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon
By Karen Kang on Nov 14, 2014 at 11:49 AM in Living With ALS

I saw the first Ice Bucket Challenge on Facebook only days after my husband, Jon Ferraiolo, was diagnosed with ALS. My husband jokingly said of the attention on ALS, How nice for everyone to be doing this for me. He is the same positive, caring guy with a brilliant mind, only now his body is failing him.

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ALS - A Companion's Perspective...Ben's Perspective

ALS - A Companion's Perspective...Ben's Perspective
By Ben Trust on Nov 06, 2014 at 09:43 AM in Living With ALS

What does it feel like to watch your companion slowly suffer the effect of ALS? What does it feel like to have the financial ax hang over you as you come out of shock and try to figure out how to support all of this? Its not easy.

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Beverly Hills Courier - Augie's Quest Traditions of Hope Gala 2014

Beverly Hills Courier - Augie's Quest Traditions of Hope Gala 2014
By Jos Cofio on Oct 31, 2014 at 03:36 PM in Overcoming Adversity

This years annual Tradition of Hope Gala, which was held Saturday evening at The Beverly Hilton, raised over $900,000 for Amyotrophic Lateral Sclerosis (ALS) research.

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ALS & Widowhood - A Transition

ALS & Widowhood - A Transition
By Jenny Gore Dwyer on Oct 30, 2014 at 12:02 PM in Overcoming Adversity

I was recently filling out some forms at the Doctor's office. I came to the part of the form, where I had to check marital status. I became frozen: There was the big flashing "widowed." I am too young for this widowed life. I think of widowed as older, way older than 52, and having lived of life of accomplishments.

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Augie's Quest & ALS-TDI - A Tradition of Hope

Augie's Quest & ALS-TDI - A Tradition of Hope
By Jos Cofio on Oct 25, 2014 at 07:26 PM in Overcoming Adversity

See Jos's personal video: Living with ALS and the research leading to treatments and a cure.

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Genervon Announces ALS and PD Phase 2a Trial Results

By Jos Cofio on Oct 20, 2014 at 05:36 PM in ALS Research

Genervon Biopharmaceuticals LLC (Genervon) today announced that it has completed the analysis of its Phase 2a double blinded, randomized, placebo controlled clinical trials of Amyotrophic Lateral Sclerosis (ALS) and Parkinsons disease for its drug candidate GM6.

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Ice Bucket Challenge - A Human Movement for ALS

Ice Bucket Challenge - A Human Movement for ALS
By Jos Cofio on Oct 09, 2014 at 12:17 PM in Friends of Beyond ALS

Steve Dezember was diagnosed with ALS in 2011. He and his wife, Hope Cross Dezember have made it their mission to spread awareness about the disease. In this piece, she continues this work.

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Beyond Survival: Thriving After Adversity

Beyond Survival: Thriving After Adversity
By Phil Macko on Oct 06, 2014 at 10:55 AM in Overcoming Adversity

Phillip Macko suffered an accident that brought him to near death and led him to years of taking pain killers. He not only survived, but he thrived, having learned from the experience.

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