José, Ben and Life Today - Blog

ALS Ice Bucket Challenge - Gay Couple Reveals Living With ALS

ALS Ice Bucket Challenge - Gay Couple Reveals Living With ALS
By Jos Cofio on Aug 22, 2014 at 04:27 PM in Overcoming Adversity

My partner of 16 years, Ben Trust and I figured we would live a long life together. We were both healthy, regulars at the gym, and also loved to hike. We ate the right things and used sunscreen. As with many in the gay community, the way we looked was important. Then, slowly, I began to have cramping in my legs and abs, and twitching in my arms and legs. I thought nothing of it until after two days of hiking and bike riding, I collapsed when I got off my bike.

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Augie's Quest Tradition of Hope Gala

Augie's Quest Tradition of Hope Gala
By Jos Cofio on Aug 20, 2014 at 10:39 AM in Friends of Beyond ALS

I am honored to be this years recipient of the Augies Quest Tradition of Hope Courage Award given to an individual who exemplifies courage in the face of Adversity. A person who uses their spirit and zest for life to turn misfortune into a beacon of hope. I can only hope to live up to this ideal, and for a long time.

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Forbes Norris ALS Clinic Visit - A Progressing Disease

Forbes Norris ALS Clinic Visit - A Progressing Disease
By Jos Cofio on Aug 08, 2014 at 09:50 AM in General Health

Monday of this week was a good day; A very good day, indeed. Ben and I travelled to the Forbes-Norris Clinic for my periodic check-up. The clinic is named after Forbes (Ted) Norris, a renowned neurologist who dedicated his life to helping people with ALS.

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Restaurant Finance Monitor President John Hamburger Supports Beyond ALS

Restaurant Finance Monitor President John Hamburger Supports Beyond ALS
By Jos Cofio on Aug 06, 2014 at 03:17 PM in Friends of Beyond ALS

John Hamburger, President of Franchise Times and Restaurant Finance Monitor helped announce the launch of BeyondALS.org in a recent issue of The Monitor.

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Living with ALS: Keep Moving as Much as You Can!

Living with ALS: Keep Moving as Much as You Can!
By Jos Cofio on Jul 14, 2014 at 11:23 AM in General Health

There are some good days living with ALS. Yesterday was one of those.

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Lou Gehrig - Let's Give His Name Back to Baseball

By Jos Cofio on Jul 09, 2014 at 10:45 AM in Overcoming Adversity

I had the great pleasure and honor to speak to the fans and throw out the first ball at the Fourth of July game of the Bellingham Bells in Washington State. My thoughts included the goal of finding a solution for ALS and having the Iron Horse's name return for being synonymous with outstanding baseball and not with a deadly disease.

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Bellingham Bells & Lou Gehrig's 75th Anniversary

Bellingham Bells & Lou Gehrig's 75th Anniversary
By Jos Cofio on Jun 26, 2014 at 04:25 PM in Friends of Beyond ALS

When we asked Eddie Poplawski, owner of the Bellingham Bells Baseball Club, to help raise awareness and funds, he did not hesitate. He, his GM Nick Caples and the entire Bells crew have put together a great event on the 75th anniversary of Lou Gehrig's Yankee Stadium farewell speech.

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BeyondALS.org Takes Flight

By Jos Cofio on Jun 23, 2014 at 05:39 PM

Today we a launching a new tool in our battle to find a solution for ALS. The BeyondALS.org website will help readers find resources focused against Lou Gehrig's Disease and links to the latest research in combating it. Ben Trust and I will share our own insights into what is to live with the disease and to live with someone who has it.

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