José, Ben and Life Today - Blog

Great Results Through Understanding

By Jos Cofio on Mar 18, 2017 at 08:28 PM in Overcoming Adversity

I went to my friends seeking support last week, hopeful, but not knowing what to expect. By any measure, the financial results have been incredible.

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'Right To Try' Congressional Bill for ALS Patients

 'Right To Try' Congressional Bill for ALS Patients
By Matt Bellina on Jul 14, 2016 at 06:28 PM in ALS Research

Without any intended insult, Matt Bellina does not believe it is the role of interest groups or bioethicists who have never met him to dictate how he should find value in his remaining days. If some believe that living without hope is superior to living with the risk of side effects that is their personal business.

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SB Independent - Ice Bucket Challenge: One Year Later

SB Independent - Ice Bucket Challenge: One Year Later
By Jos Cofio on Aug 19, 2015 at 09:30 AM in Living With ALS

ALS Research has been helped by the money raised during the Ice Bucket Challenge, but much is left to do.

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On Being a Patient Patient with Impatience

On Being a Patient Patient with Impatience
By Jos Cofio on Aug 03, 2015 at 10:50 AM in Overcoming Adversity

How can you be "a patient", "patient" and "impatient" simultaneously? As it turns out, it is very achievable for all of us.

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ALS & The Subconscious Mind - Dreaming of a Healthy Body

ALS & The Subconscious Mind - Dreaming of a Healthy Body
By Jos Cofio on Jul 16, 2015 at 12:05 PM in Living With ALS

My subconscious mind is sending a message: All will be well as my mind helps my body and spirit move forward.

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NYT: "Two Ways to be Happy" - JC: Opportunity out of Adversity

NYT:
By Jos Cofio on Jun 03, 2015 at 10:20 AM in Overcoming Adversity

Opportunity may seem to be a sudden manifestation, as though by divine intervention, but it is really a result of our own life experience and made obvious only if we are open to its existence. The opportunity is there it is our awareness of it that is lacking.

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YPO/WPO Dinner - Overcoming Mental Obstacles & Finding Energy

YPO/WPO Dinner - Overcoming Mental Obstacles & Finding Energy
By Jos Cofio on May 14, 2015 at 10:27 AM in Living With ALS

An event I was enthusiastically anticipating quickly became tainted by doubt and worry. I considered cancelling at the last moment, searching my brain for a plausible excuse for bowing out. I am so glad I went through with it.

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Familial ALS Solution - NOW!

Familial ALS Solution - NOW!
By Steven Perrin on May 07, 2015 at 03:20 PM in ALS Research

The health care system can start to eradicate familial ALS today. The technology exists. But is the world ready to accept the technology and utilize it to rid families of this devastating disease?

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ALS: Mind-Body Connection & The Impact of Anger

ALS: Mind-Body Connection & The Impact of Anger
By Jos Cofio on May 06, 2015 at 07:19 PM in Living With ALS

There is plenty to be angry about and some people take the opportunity to do so at every turn. One need only watch the evening news to know this is the case. Perhaps none have a greater right to this emotion, or even rage, than those living with, or around, ALS. However, I have a different thought.

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ALS Awareness Month - EVERY Day

ALS Awareness Month - EVERY Day
By Jos Cofio on May 04, 2015 at 11:14 AM in Living With ALS

May is ALS Awareness month. Those of us with a front row seat to the disease are well aware of this fact, and many are doing their part to spread the word. By living our lives honestly, we make people aware of ALS - not just this month, but every day.

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