Thoughts and Comments

Living with ALS is a journey of innumerable ups and downs. You have come to BeyondALS because you, in some way, have been touched by Lou Gehrig's Disease: as a PALS, caregiver, family member, or friend. Sharing your own experiences and thoughts will help others, as we all deal with the realites of living with ALS and with life after it has taken a dear one.

We offer this space as an opportunity to share, celebrate, rant and grieve. At its heart, this is YOUR page to help us all go Beyond ALS.

Oct 03, 2014 Arrow1 Down Reply
June Day

Thanks to Beyond ALS, I was able to help my daughter understand what was happening to her. Thank you for making this information available!

Oct 17, 2014 Arrow1 Down Reply

"The conquest of fear yields the courage of life. That is the cardinal initiation of every heroic adventure - fearlessness and achievement."

-- Joseph Campbell (1904 - 1987)

Feb 20, 2015 Arrow1 Down Reply
Luisa Amelia Moros

Saludos Jos Cofio..!!
Deseo agradecer tu gentileza de publicar en tu blog mis palabras.
Tuve problemas con internet, hasta ahora puedo manifestar mi agradecimiento..
Recibe un gran abrazo en la distancia.

Mar 15, 2015 Arrow1 Down Reply

@Luisa Amelia Moros: Un abrazo.

Jan 28, 2016 Arrow1 Down Reply
Luz Edith Jaramillo

Saludos Sr. Jose Cofino

Soy Colombiana y vivo en Miami. Fui diagnosticada por primera vez con ALS en diciembre del 2015 mientras vivia en Ohio. He hecho contacto con una enfermera que se especiliza en ELA y me envio su link y lo publico en face book. ella se llama Estela Ganuza.
Yo apenas me estoy animando a participar en grupos de apoyo y programas que tratan del tema.
Me pudiera explicar como estar mas activa para integrarme a esta causa? En que estado esta usted y esta organizacion? cuales son los pasos a seguir? que metodos utilizar para pedir donaciones y respaldo? Como utilizan los fondos? Yo trabajaba en Ohio con una non profit relacionada con business development y me parece muy interesante poder participar. Tengo my Faceebook page bajo el nombre de luz edith Jaramillo arias.
Atentamente,
Luz

Mar 04, 2017 Arrow1 Down Reply
Helena Mark

Goodday my friends
my name is Helena Mark I was diagnosed of ALS disease in 2003. Despite how long ALS has existed and how many
fine human beings are lost due to ALS, it is embarrassing to know that our doctors still tells us there is still no effective treatment,
nor cure. With Cancer there is at least a fighting change with chemotherapy and radiation, I have tried all I can to get cured but nothing,
except a $900 hundred dollar pill which only promises to extend life for 1-2 months at the most?.ALS is a horrible,
devastating and cruel disease which should have been eradicated., My life was gradually coming to an end, untill
I saw DOC. OSA ELO email id : [email protected] on google during my research for alternative cure for ALS..
i know health is wealth thus I decided to give it a try, thank God I did.
When I contact this herbal doctor through his email, he told me not to worry, he prepared for me an ALS herbal remedy
and sent it to me through a courier service, I got the herbal remedy four working days after placing an order. He sent the
instructions on how I will take the herbs through email, which I did as instructed, OMG I started noticing change all over
my body after 7 days of taking the herbs, I was totally cured of this deadly ALS disease after three weeks. Now i'm happy
and free from this deadly disease, Its all thanks to you Dr OSA ELO, may God bless your herbal home.
Contact this great herbal doctor on his email: [email protected] for cure so you can testify like me. wishing you happy recovery.

1 day ago Arrow1 Down Reply
Zehavi stella

Please some details about Dr. OSA ELO
MY DAUGHTER DIAGNOSED ALS 2PPR

1 day ago Arrow1 Down Reply
Zehavi stella

Please some details about Dr. OSA ELO
MY DAUGHTER DIAGNOSED ALS 2PPR

1 day ago Arrow1 Down Reply

@Helena Mark: my email is [email protected]
Diagnosed ALS 2004