All my life, hard work and perseverance paid off. If I put my mind to something it would eventually happen. The path was filled with bumps and detours, but I reached my goals all the same. I've been approaching ALS with the same conviction. I share my struggle, not for pity, but to encourage you to live your best life.
I saw the first Ice Bucket Challenge on Facebook only days after my husband, Jon Ferraiolo, was diagnosed with ALS. My husband jokingly said of the attention on ALS, �How nice for everyone to be doing this for me.� He is the same positive, caring guy with a brilliant mind, only now his body is failing him.
What does it feel like to watch your companion slowly suffer the effect of ALS? What does it feel like to have the financial ax hang over you as you come out of shock and try to figure out how to support all of this? Its not easy.
