Living With ALS

Living with ALS - Surrendering at a New Level

Living with ALS - Surrendering at a New Level
By Shelly Hoover on Nov 17, 2014 at 10:05 AM in Living With ALS

All my life, hard work and perseverance paid off. If I put my mind to something it would eventually happen. The path was filled with bumps and detours, but I reached my goals all the same. I've been approaching ALS with the same conviction. I share my struggle, not for pity, but to encourage you to live your best life.

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Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon

Beyond Stephen Hawking & the ALSIceBucketChallenge: My Journey with Jon
By Karen Kang on Nov 14, 2014 at 11:49 AM in Living With ALS

I saw the first Ice Bucket Challenge on Facebook only days after my husband, Jon Ferraiolo, was diagnosed with ALS. My husband jokingly said of the attention on ALS, How nice for everyone to be doing this for me. He is the same positive, caring guy with a brilliant mind, only now his body is failing him.

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ALS - A Companion's Perspective...Ben's Perspective

ALS - A Companion's Perspective...Ben's Perspective
By Ben Trust on Nov 06, 2014 at 09:43 AM in Living With ALS

What does it feel like to watch your companion slowly suffer the effect of ALS? What does it feel like to have the financial ax hang over you as you come out of shock and try to figure out how to support all of this? Its not easy.

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