ALS Research has been helped by the money raised during the Ice Bucket Challenge, but much is left to do.
An event I was enthusiastically anticipating quickly became tainted by doubt and worry. I considered cancelling at the last moment, searching my brain for a plausible excuse for bowing out. I am so glad I went through with it.
There is plenty to be angry about and some people take the opportunity to do so at every turn. One need only watch the evening news to know this is the case. Perhaps none have a greater right to this emotion, or even rage, than those living with, or around, ALS. However, I have a different thought.
May is ALS Awareness month. Those of us with a front row seat to the disease are well aware of this fact, and many are doing their part to spread the word. By living our lives honestly, we make people aware of ALS - not just this month, but every day.
Living honestly is liberating and yields many unforeseen benefits. It is not just about being truthful with others, but being transparent with ourselves so that real solutions may be found.
On the day I told mam� I had been diagnosed with ALS, her mind immediately went to what she could do to help. Prayer came to mind. Later, a friend stepped up to help her live in an assisted living community near us.
Stephen Hawking, living with ALS for decades, has given rise to one of the most striking contrasts of pop science. There is Stephen Hawking�s atrophied frame, slack-jawed expression and slumped shoulders. And there is Hawking�s unmatched mind, inhabiting the stars.
Open and honest discussions are essential in the discovery of fact and the forming of opinion. This is crucial if we are going to find solutions for ALS.
I went snorkeling in Costa Rica last week. An event not covered by media, even the plethora of cameras our group used to document an amazing week in Central America.
