I went to my friends seeking support last week, hopeful, but not knowing what to expect. By any measure, the financial results have been incredible.
Without any intended insult, Matt Bellina does not believe it is the role of interest groups or bioethicists who have never met him to dictate how he should find value in his remaining days. If some believe that living without hope is superior to living with the risk of side effects that is their personal business.
ALS Research has been helped by the money raised during the Ice Bucket Challenge, but much is left to do.
How can you be "a patient", "patient" and "impatient" simultaneously? As it turns out, it is very achievable for all of us.
My subconscious mind is sending a message: All will be well as my mind helps my body and spirit move forward.
Opportunity may seem to be a sudden manifestation, as though by divine intervention, but it is really a result of our own life experience and made obvious only if we are open to its existence. The opportunity is there� it is our awareness of it that is lacking.
An event I was enthusiastically anticipating quickly became tainted by doubt and worry. I considered cancelling at the last moment, searching my brain for a plausible excuse for bowing out. I am so glad I went through with it.
The health care system can start to eradicate familial ALS today. The technology exists. But is the world ready to accept the technology and utilize it to rid families of this devastating disease?
There is plenty to be angry about and some people take the opportunity to do so at every turn. One need only watch the evening news to know this is the case. Perhaps none have a greater right to this emotion, or even rage, than those living with, or around, ALS. However, I have a different thought.
May is ALS Awareness month. Those of us with a front row seat to the disease are well aware of this fact, and many are doing their part to spread the word. By living our lives honestly, we make people aware of ALS - not just this month, but every day.
