ALS TDI Precision Medicine Program - Mapping Genomes & Creating Stem Cell Lines
ALS TDI to MGH: The first step in my PMP experience
On Monday, September 29, we were driven the short distance across the bridge to Boston from ALS TDI in Cambridge to a clinic at the Massachusetts General Hospital. I was there to have blood drawn that would be used to map my Genome, and have some skin tissue harvested to be used in creating my personal line of stem cells. All this as part of the Institute’s drive to find solutions for ALS through its Precision Medicine Program research using induced pluripotent stem cells (iPS technology).
Dr. Steve Perrin: Mapping the Genome & Creating Stem Cell Lines
I had a good notion what was going to happen. I’d been thinking about that moment often, from the very first conversation I had with Dr. Steve Perrin at a Corey’s Crusade fundraiser in Oakland last year. Dr. Perrin and I had just met, and I was amazed by what I heard from him: ALS TDI , in its drive to find treatments, was designing research that would use the mapping a patient’s genome, creating personal stem cell lines from skin tissue, growing nerve and muscle cells, by the millions, and testing thousands of medicines to see their possible effect on the cells. It sounded like sci-fi. A few years ago it would have been, I suppose. One thing I knew at that instant: I had to be a part of it.
Initial ALS Diganosis - Intial Commitment to Help
When I was first diagnosed with Lou Gehrig’s Disease over two years ago, my partner Ben Trust and I almost immediately made the commitment that we would seek any opportunity to help find treatments, or a cure, for ALS. We had no idea how trials were done, by whom, or where, but we were sure I should be a part of one, or, perhaps, more. It wasn’t so much that we were hoping I would be cured, for we had no clue how much time I had left, but that we had to find meaning by taking the power away from the disease and using our energy to beat it.
My particular version of a disease is clearly moving slowly. Ben and I had been given the gift of time. So, a year after we met Dr. Perrin, ALS TDI had cleared all governmental hurdles, was launching the research and I immediately applied on the website. Suddenly, there we were in a car on our way to MGH to take the first step in fulfilling our commitment.
Genome and Stem Cells
The procedure was quick. No more than a minute or two to draw a couple of test tubes worth of blood; A few more to anesthetize a small section on the inside of my right arm to prepare to get a bit of skin. Again, I found the science to be fascinating. I watched as the doctor used what looked like a pencil with a hollow point to, quite literally, bore into my arm, leaving a neat circle. There was not much blood as she pulled on skin in the center of the circle, brought out some tissue and snipped it, carefully dropping it into another tube. It was tiny – a pinhead of living tissue. The application of an adhesive bandage marked the end of the procedure. Total time: no more than ten minutes.
I was so mesmerized by the procedure itself that it was not until later – right now really, as we fly back to California from Logan - that the enormity of that moment hit me. That tiny bit of me, so insignificant in its appearance, had the potential to help unlock the mystery of a deadly disease. A disease so feared and hated, so merciless in its progression towards death, so elusive in divulging its true nature. And, yet, that part of me now sitting in the ALS TDI lab could indeed be of incredible significance, not only to me, but to so many.
Gratitude & Hope
I am as amazed and in awe of the science now, as I was when Dr. Perrin first shared it with me over a glass of wine; In fact, even more so now. At the same time, I am so honored, grateful and humbled by the opportunity to have a part of me be a part of this. Ben and I continue our commitment to help find a solution. I sit here jetting home across the country, hoping, for all of us now living with ALS and those who will be diagnosed tomorrow, that my tiny contribution of cells turns out to be a huge step forward as we go Beyond ALS.
I will come to you!
MUST READ: HOW I GOT CURED FROM ALS DISEASE)
I am from Philadelphia, I was diagnosed of ALS disease (Lou Gehrig's disease) in 2013 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Ghonorhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dralegbe. Contact this great herbal doctor via his email [email protected]
MUST READ: HOW I GOT CURED FROM ALS DISEASE)
I am from Philadelphia, I was diagnosed of ALS disease (Lou Gehrig's disease) in 2013 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Ghonorhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dralegbe. Contact this great herbal doctor via his email [email protected]
MUST READ: HOW I GOT CURED FROM ALS DISEASE)
I am from Philadelphia, I was diagnosed of ALS disease (Lou Gehrig's disease) in 2013 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Ghonorhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dralegbe. Contact this great herbal doctor via his email [email protected]
I am from U.S.A, I was diagnosed of ALS disease (Lou Gehrigs disease) in 2012 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure HIV/aids and all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Gonorrhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dr ODI. Contact this great herbal doctor via his email [email protected]
(A MUST READ: HOW I GOT CURED FROM ALS DISEASE)
I am from Philadelphia, I was diagnosed of ALS disease (Lou Gehrig's disease) in 2012 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Ghonorhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dr. Contact this great herbal doctor via his email [email protected] or [email protected] or do drsuccessfulcur[email protected] contact him via mobile number +2348136638519..
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Am the happiest man on earth,i was once having the problem of weak erection and quick ejaculation,due to my over masturbation during my young age,i saw a testimony of some one on how he was be cured from his weak erection problem,I got his contact,and i explain my self to him,and he gave me the treatment to it and that was all,now am fine no more problem of weak erection and quick ejaculation,my pennis that was very small his now on a normal size.you can reach him on +2348077210007 or [email protected]
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ALL THANKS TO DR WILLIAMS FOR GETTING MY WIFE OUT OF FIBROID WITH HIS HERB One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man and not just a man a real man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 18 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. williams to me, i contacted him and she sent me a medicine and this medicine shrinked it naturally in a weeks it was like magic but it's science. I am happy writing this because she delivered a baby girl. Do not loose hope too soon contact him on drwi[email protected] and i am confident she will help you too.
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ALL THANKS TO DR BABALORIXA FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
My daughter suffered from a terrible tinnitus for more than 15years which started after she turned 5 we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and screamed most times. She usually tells me she hears hissing and ringing noises. This were steady noise that disrupted her entire life, even at night she screams even more because the sounds become louder because everywhere is quiet and she slept less because of this.It was during a casual conversation with a friend that i learned about Dr babalorixa herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have Tinnitus, do not hesitate to contact him on [email protected] for advice and for his product. I hope this also helps someone out there
I got married to my lovely husband for the past 7 years without conceiving and fibroid was the issue, i took different prescribed medication but could not cure it but my husband was so confident in me and kept encouraging me that one day someone would call me mother, we did not rest searching for solution from different Doctors all they could say was surgery and i was afraid of that then a friend in my office introduced me to Dr. Davismartin who sent his product to me which i took and it really worked perfectly, and my Dr. confirm me pregnant after 2 months of taken his product. i gave birth to a BABY GIRL February this year and i will named her TESTIMONY. contact him also at [email protected].
An amazing testimony on on how i conceive, also cure from fibroid, i wonder why people still don't believe that roots and herbs are very essential and fruitful in different aspect, especially when you can't conceive and bear children. I am a living witness because I tried all I could to be pregnant but all to no avail, on this faithful day, i decided to check the net for updates on healthy living and i came across testimonies of lot of women who Dr Ahiga has helped with his native herbs to conceive. i decided to put a try because this has been my greatest problem in life so I emailed Dr Ahiga, and he told me what to do which i did, after which he sent me some roots and herbs syrup and gave me step by step guild lines on how and when to have sex with my man. I missed my menstrual flow within a short period of taking it, and the doctor confirmed that I am pregnant. I am very glad to tell the world that I just put to bed a bouncing baby boy last week. Contact Dr Ahiga for your own testimony on: ([email protected]).
My daughter suffered from a terrible seizure for more than 9 years which started after she turned 7 we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and screamed most times. She usually tells me she feel pain. This were steady pain that disrupted her entire life, even at night she screams even more because the seizure become painful because everywhere is quiet and she slept less because of this. I was able to contact Dr.lewishill. on the matter and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have seizure, do not hesitate to contact him on [email protected] for advice and for his product. I hope this helps someone out there.
He also have a herbal cure for Following DISEASES,this is not scam is 100%
Real.
-PENIS ENLARGEMENT AND WEAK ERECTION
-VIRGINA PROBLEM
-WHOOPING COUGH
- HEPATITIS B
-FORDYCE SPOT
-ALS
-LOWER RESPIRATORY INFECTION
-LOW SPERM COUNT
-MRSA(METHICILLIN-RESISTANT STAPHYLOCOCCUS AUREUS
-ZIKA VIRUS
-COPD
-STROKE
-IMPOTENCE
-PILE
-HYPERTENSION
-LOW SPERM COUNT
-MENOPAUSE DISEASE
-ASTHMA
-CANCER
-BARENESS/INFERTILITY
-PCOS
-SHINGLES
-VIRAL HEPATITIS/HEPATITIS B
-FIBROID
-ASTHMA
-SICKLE CELL
-TINNITUS
-BARENESS/INFERTILITY
EMAIL DR. SEBI via > [email protected]
Dr.lewishill product is a real cure to Tinnitus,I am 38 years old, I suffered from permanent tinnitus for about 10 years, mostly in my right ear... which means I've got this constant in my ears, which has also made me somewhat deaf. It's like this Whee! noise in my head all the time. My T was more steady, this is due to prolonged exposure to the loud volume of concerts. Looking after your ears is unfortunately something you don't think about until there's a problem. I wish I'd thought about it earlier. There were days when I didn't know whether I would survive, I was so tormented by this symptoms. When I lay down to sleep it bothers me the most, As I lay my head on the pillow, it cancels out all the other noise but the Tinnitus. The Good News is that after using lewi shill Herbal medicine, Tinnitus is gone, try it also it going to work for you. There are real cure and do not be discouraged. Hang in there... Better days will come (email him on: [email protected])